OPEN DATA HANDBOOK California Health and Human Services Agency

7. Resources

Open Data Resources

Catalogs

Datacatalogs.org | http://datacatalogs.org/
DataCatalogs.org aims to be the most comprehensive list of open data catalogs in the world. It is curated by a group of leading open data experts from around the world - including representatives from local, regional and national governments, international organizations such as the World Bank, and numerous NGOs.

LOGD Dataset Catalog | http://logd.tw.rpi.edu/datasets
The Linking Open Government Data (LOGD) project investigates opening and linking government data using Semantic web technologies. We are translating government-related datasets into RDF, linking them to the Web of Data and providing demos and tutorials on mashing up and consuming linked government data.

Conferences/Events

CHCF Storytelling with Data: Sacramento | http://multimedia.journalism.berkeley.edu/chcfdataviz/
Workshops geared toward those interested in learning how to transform data into easily understood charts and graphs, are open to health reporters and bloggers, health related non-profits, and advocacy groups, staff at state and local health agencies and legislative staff.

Health and Human Services Open DataFest | http://www.cvent.com/events/health-human-services-open-datafest/event-summary-9266659df3fb45079dbf799b8d1942c9.aspx
The California Health and Human Services Agency is exploring ways to increase access to public data, drive meaningful use, spur innovation, and enhance the linkages between health and human service programs across the state. To advance this effort, the Open DataFest symposium brings together a diverse group of thought leaders from health, human services, public health, education, criminal justice, research, academia, industry, entrepreneurs, associations and a variety of other relevant organizations.

Health DataPalooza | http://healthdatapalooza.org/
Health Datapalooza is a national conference focused on liberating health data, and bringing together the companies, startups, academics, government agencies, and individuals with the newest and most innovative and effective uses of health data to improve patient outcomes.

Transparency Camp | http://transparencycamp.org/
Transparency Camp is an “unconference” for opengov, an event where, every year hundreds of people gather to share their knowledge about how to use new technologies and policies to make our government really work for the people—and to help people work smarter with our government.

Consultants

Almirante Partners | http://www.almirantepartners.com/
Almirante Partners draws on decades of experience with new ideas, implementing programs, building strategy, directing projects. We specialize in the innovative ways to approach complex concepts in government and understand that without a strategy, it’s difficult to chart a course.

Health Data Consortium | http://www.healthdataconsortium.org/
A public-private partnership working to foster the availability and innovative use of open health data to improve health and healthcare.

Stewards of Change | http://www.stewardsofchange.com/Pages/default.aspx
A business with a social mission: to provide public, private and nonprofit human service agencies with cross-sector innovations to take social change to scale and to create a connected health, education, judicial and human service system that is customer-centric, family-focused, community engaged and technology-enabled.

Urban Strategies Council | http://urbanstrategies.org
A nonprofit research and innovation organization with decades of experience of applied spatial data analysis, social & health research, as well as a national leader in developing Open Data initiatives.

Funders

California Healthcare Foundation | http://www.chcf.org/
CHCF works as a catalyst to fulfill the promise of better health care for all Californians. We support ideas and innovations that improve quality, increase efficiency, and lower the costs of care.

Robert Wood Johnson Foundation | http://www.rwjf.org/en.html
The nation’s largest philanthropy devoted solely to the public’s health.

Literature

Beyond Transparency | http://beyondtransparency.org/
Beyond Transparency is a cross-disciplinary survey of the open data landscape, in which practitioners share their own stories of what they’ve accomplished with open civic data. It seeks to move beyond the rhetoric of transparency for transparency’s sake and towards action and problem solving.

NNIP @ the Urban Institute | http://neighborhodindicators.org
The National Neighborhood Indicators Partnership (NNIP) is a collaborative effort by the Urban Institute and local partners to further the development and use of neighborhood information systems in local policymaking and community building.

News

Data Act Passes | http://www.govtech.com/data/The-DATA-Act-Passes-3-Takeaways-and-Interactive-Timeline.html
President Obama signs bill to turn all federal expenditures into open data.

HealthData.gov | http://healthdata.gov/
A federal government website managed by the U.S. Department of Health & Human Services covering news, events, and information for developers.

Healthdatamanagement.com | http://www.healthdatamanagement.com/
For more than 14 years, Health Data Management has been the leading source for news and in-depth analysis on using information technology to achieve business goals and improve the quality of care; a trusted resource for the critical knowledge that senior executives need to make the right decisions in a highly competitive market.

Nextgov.com | http://www.nextgov.com/big-data/open-data/63211/
Nextgov is the all-day information resource for federal technology decision makers. Through news, analysis and insights from our award-winning journalists and a nationwide community of expert voices, Nextgov provides the first word on technology and government.

Portals

By City

By County

By State

By Country

Presentations

European Commission Open Data Project Work Program 2014 - 2016, IES-H06 | http://ies.jrc.ec.europa.eu/uploads/SDI/2014%20Project%20slides/OpenData-outline.pdf
Open Data Project presented by the European Commission

Open Data in Practice Part II: The Practicalities of Open Data | http://www.w3.org/2012/Talks/0417-LD-Tutorial/Practice.pdf
Tutorial given at the “WWW 2012 Conference” in Lyon, France on the 16th of April, 2012.

Reference Materials

Github | http://project-open-data.github.io/
Powerful collaboration, code review, and code management for open source and private projects.

CHHS Data Release Permission Decision Tree | https://github.com/chhsdata/opendatahandbook/raw/gh-pages/documents/CHHS-Open-Data-Release-Permission-Decision-Tree.pdf
Resource developed to help departments and offices determine a dataset’s permission level.

CHHS Priority Scoring Template | https://github.com/chhsdata/opendatahandbook/raw/gh-pages/documents/CHHS-Open-Data-Priority-Scoring-Template.xlsx
Resource developed to help departments and offices prioritize open data for publishing.

CHHS Data De-Identification Guidelines | https://github.com/chhsdata/dataplaybook/raw/gh-pages/documents/CHHS-DDG-V1.0-092316.pdf
Guidelines developed for use across CHHS departments and offices to assist programs in assuring adequate de-identification has been performed prior to public release of data.

Solutions

CKAN | http://ckan.org/solutions/
CKAN is the world’s leading open-source data portal platform. It is a complete out-of-the-box software solution that makes data accessible – by providing tools to streamline publishing, sharing, finding and using data.

ESRI | https://opendata.arcgis.com/about
ArcGIS Open Data allows you to leverage your investment in the ArcGIS platform. You’ll be able to easily share the data you’ve collected, curated, and maintained in ArcGIS Online with everyone.

Junar | http://www.junar.com/
Junar delivers all the benefits of SaaS (Software-as-a-Service) to help organizations Open Data to spur innovation. Junar makes is easy to deal with complex end-to-end Open Data projects and turns the difficult task of opening data into a secure and controlled process.

OpenGov | https://opengov.com/open-data
OpenGov’s comprehensive open data and financial transparency solutions help agencies of all sizes drive accountability, make data more useful, engage the public, and unlock economic potential.

Socrata | http://www.socrata.com/
Socrata helps public sector organizations improve transparency, citizen service, and data-driven decision-making. Socrata’s user-friendly solutions deliver data to governments trying to reduce costs, to citizens who want to understand how their tax dollars are used, and to civic hackers dedicated to creating new apps and improving services.

Strategic Plan

Open Data in San Francisco: Institutionalizing an Initiative | http://sfmayor.org/Modules/ShowDocument.aspx?documentID=425
The San Francisco strategic plan is designed to build the elements of an institutional approach to open data and data use more generally.

Visualizations

EPA Data Finder | http://www.epa.gov/emefdata/em4ef.home
This site makes available a large selection of EPA data sources, organized into topics such as air and water that are in easily downloadable formats. Data Finder points to data in downloadable formats to speed up environmental research. For each data source, you can see a basic overview, including the geographic scale and other contextual information, then access the data source itself.

Geographic Information System at CDC | http://www.cdc.gov/gis/index.htm
GIS at CDC was developed to create and display interactive maps of national, state, or country rates for key health statistics originating from different CDC programs, broken out by geography, gender, and ethnicity. Web applications include, but are not limited to, Environmental Health, Chronic Disease Prevention and Health Promotion, and Rabies Surveillance.

HealthMap | http://www.healthmap.org/en/
HealthMap brings together disparate data sources to achieve a unified and comprehensive view of the current global state of infectious diseases and their effect on human and animal health. This freely available site integrates outbreak data of varying reliability, ranging from news sources to curated personal accounts to validated official alerts.

National Cancer Institute GIS & Science | http://gis.cancer.gov/
This site serves as a central source of information, data, tools, relevant publications and web mapping tools for cancer data.

National Environmental Public Health Tracking Network | http://ephtracking.cdc.gov/showHome.action
The National Environmental Public Health Tracking Network (Tracking Network) is a system of integrated health, exposure, and hazard information and data from a variety of national, state, and city sources. On the Tracking Network, you can view maps, tables, and charts with data about Environments, Public Health, Health Effects, and info by locations.

PolicyMap | http://Policymap.com
PolicyMap is an online data and mapping tool that enables government, commercial, non-profit and academic institutions to access data about communities and markets across the US. Use it for research, market studies, business planning, site selection, grant applications and impact analysis.

TOXMap – Environmental Health E‐Maps | http://toxmap.nlm.nih.gov/toxmap/main/index.jsp
TOXMAP is a GIS from the Division of Specialized Information Services of the US National Library of Medicine that uses maps of the United States to help users visually explore data from the US Environmental Protection Agency (EPA)’s Toxics Release Inventory (TRI) and Superfund Program.

World Health Organization Data & Statistics | http://gis.emro.who.int/PublicHealthMappingGIS/
The World Health Organization (WHO) maintains mortality and global health estimates and provides access to data for analysis and monitoring through a data depository, world health statistics report, country statistics, maps, and the WHO indicator registry. WHO has also created a HealthMapper application to address critical surveillance needs across infectious disease programs at national and global levels.